Opinion | What Companies and Government Bodies Aren’t Telling You About AI Profiling

By Tara Davis & Murray Hunter |

Artificial intelligence has moved from the realm of science fiction into our pockets. And while we are nowhere close to engaging with AI as sophisticated as the character Data from Star Trek, the forms of artificial narrow intelligence that we do have inform hundreds of everyday decisions, often as subtle as what products you see when you open a shopping app or the order that content appears on your social media feed.

Examples abound of the real and potential benefits of AI, like health tech that remotely analyses patients’ vital signs to alert medical staff in the event of an emergency, or initiatives to identify vulnerable people eligible for direct cash transfers.

But the promises and the success stories are all we see. And though there is a growing global awareness that AI can also be used in ways that are biased, discriminatory, and unaccountable, we know very little about how AI is used to make decisions about us. The use of AI to profile people based on their personal information – essentially, for businesses or government agencies to subtly analyse us to predict our potential as consumers, citizens, or credit risks – is a central feature of surveillance capitalism, and yet mostly shrouded in secrecy.

As part of a new research series on AI and human rights, we approached 14 leading companies in South Africa’s financial services, retail and e-commerce sectors, to ask for details of how they used AI to profile their customers. (In this case, the customer was us: we specifically approached companies where at least one member of the research team was a customer or client.) We also approached two government bodies, Home Affairs and the Department of Health, with the same query.

Why AI transparency matters for privacy
The research was prompted by what we don’t see. The lack of transparency makes it difficult to exercise the rights provided for in terms of South Africa’s data protection law – the Protection of Personal Information Act 4 of 2013. The law provides a right not to be subject to a decision which is based solely on the automated processing of your information intended to profile you.

The exact wording of the elucidating section is a bit of a mouthful and couched in caveats. But the overall purpose of the right is an important one. It ensures that consequential decisions – such as whether someone qualifies for a loan – cannot be made solely without human intervention.

But there are limits to this protection. Beyond the right’s conditional application, one limitation is that the law doesn’t require you to be notified when AI is used in this way. This makes it impossible to know whether such a decision was made, and therefore whether the right was undermined.

What we found
Our research used the access to information mechanisms provided for in POPIA and its cousin, the Promotion of Access to Information Act (PAIA), to try to understand how these South African companies and public agencies were processing our information, and how they used AI for data profiling if at all. In policy jargon, this sort of query is called a “data subject request”.

The results shed little light on how companies actually use AI. The responses – where they responded – were often maddeningly vague, or even a bit confused. Rather, the exercise showed just how much work needs to be done to enact meaningful transparency and accountability in the space of AI and data profiling.

Notably, nearly a third of the companies we approached did not respond at all, and only half provided any substantive response to our queries about their use of AI for data profiling. This reveals an ongoing challenge in basic implementation of the law. Among those companies that are widely understood to use AI for data profiling – notably, those in financial services – the responses generally did confirm that they used automated processing, but were otherwise so vague that they did not tell us anything meaningful about how AI had been used on our information.

Yet, many other responses we received suggested a worrying lack of engagement with basic legal and technical questions relating to AI and data protection. One major bank directed our query to the fraud department. At another bank, our request was briefly directed to someone in their internal HR department. (Who was, it should be said, as surprised by this as we were.) In other words, the humans answering our questions did not always seem to have a good grip on what the law says and how it relates to what their organisations were doing.

Perhaps all this should not be so shocking. In 2021, when an industry inquiry found evidence of racial bias in South African medical aid reimbursements to doctors, lack of AI transparency was actually given its own little section.

Led by Advocate Thembeka Ngcukaitobi, the inquiry’s interim findings concluded that a lack of algorithmic transparency made it impossible to say if AI played any role in the racial bias that it found. Two of the three schemes under investigation couldn’t actually explain how their own algorithms worked, as they simply rented software from an international provider.

The AI sat in a “black box” that even the insurers couldn’t open. The inquiry’s interim report noted: “In our view it is undesirable for South African companies or schemes to be making use of systems and their algorithms without knowing what informs such systems.”

What’s to be done
In sum, our research shows that it remains frustratingly difficult for people to meaningfully exercise their rights concerning the use of AI for data profiling. We need to bolster our existing legal and policy tools to ensure that the rights guaranteed in law are carried out in reality – under the watchful eye of our data protection watchdog, the Information Regulator, and other regulatory bodies.

The companies and agencies who actually use AI need to design systems and processes (and internal staffing) that makes it possible to lift the lid on the black box of algorithmic decision-making.

Yet, these processes are unlikely to fall into place by chance. To get there, we need a serious conversation about new policies and tools which will ensure transparent and accountable use of artificial intelligence. (Importantly, our other research shows that African countries are generally far behind in developing AI-related policy and regulation.)

Unfortunately, in the interim, it falls to ordinary people, whose rights are at stake in a time of mass data profiteering, to guard against the unchecked processing of our personal information – whether by humans, robots, or – as is usually the case – a combination of the two. As our research shows, this is inordinately difficult for ordinary people to do.

ALT Adivosry is an Africa Digital Rights Fund (ADRF) grantee.

Participant Reflection on #FIFAfrica22: Effective Engagement in the UPR Process for Digital Rights Promotion

By Murungi Judith |

The Collaboration on International ICT Policy for East and Southern Africa (CIPESA) and Small Media held a workshop on the Universal Periodic Review (UPR) process as part of  Forum on Internet Freedom in Africa (FIFAfrica 22), which was held in Lusaka Zambia from September 26-29, 2022. The workshop is a product of the UPROAR project aimed at advancing the cause of digital rights globally by supporting engagement in international advocacy at the UPR. 

The 32 participants at the workshop represented a diverse array of backgrounds including  civil society, digital rights activism and advocacy, legal, journalism, and academia.  A total of  20 countries were also represented -Benin,Burundi, Botswana,  Cameroon, Democratic Republic of Congo, Ethiopia, Ghana, India Kenya, Mozambique, Nigeria,  Senegal, Sri Lanka, Sudan, Tanzania,Uganda,United Kingdom, United States of America, Zambia, and Zimbabwe.

The workshop entailed an overview of the UPR, its  purpose and the processes. Also included were in depth  discussions on international and regional normative frameworks on digital rights. Specific attention was drawn to the Universal Declaration of Human Rights as the first normative framework on freedom of expression. The International Convention on Civil and Political Rights (ICCPR) was also explored under the core tenets of the right to hold opinions without interference (freedom of opinion), the right to seek and receive information (access to information) and the right to impart information (freedom of expression).

It was noted that the right to freedom of expression is not absolute and that the three-part test is key in determining the circumstances which potentially justify limitations. Under Article 19 (2) of the ICCPR, limitations are specifically listed as ( i) it must be provided for in law (ii) it must pursue a legitimate aim (iii) it must be necessary for a legitimate purpose.

The three-part-test formed the basis of heated debate related to electoral democracy and internet shutdowns in countries like Cameroon and Tanzania when compared to Kenya where the government did not impose an internet shutdown during their recent elections. As a result of the comparative discussions, participants reached  the conclusion that there are still actions of governments that are a threat to internet freedom such as arrests, detention and assassination of some journalists. It is the responsibility of civil society, activists and human rights defenders to hold governments accountable through the use and increased participation in the UPR process. 

The presence of Hon. Neema Lugangira from Tanzania, a member of Tanzanian Parliament and the Chairperson of the African Parliamentary Network on Internet Governance in the sessions was priceless and a beacon of hope in bridging the gap between civil society and policy makers towards promoting digital rights through the UPR.

The workshop also explored various case law on freedom of expression in Africa including precedent such as in Lohé Issa Konaté v Burkina Faso. Participants deliberated on the relevance of evaluating and critically assessing the law and ensuring that cases are framed in a manner that is in line with the jurisdiction of the particular court of law approached without which matters could be thrown out. This session gave the participants a clear understanding of the link between offline and online rights and specific laws that apply to minority and marginalised groups such as children, women, persons with disabilities and other vulnerable communities. 

The session on campaign and advocacy planning aimed at equipping participants with the necessary tools required to engage partners on how to carry out campaigns and to execute advocacy strategies through the UPR. It highlighted the eye-catching and precise advocacy materials that could be used in social media as well as other platforms for the UPR at local level. It led to discussions on the critical role played by local stakeholders in leveraging the UPR for digital rights development in their various contexts. The session helped the participants understand how to engage with local partners and to ensure that there is effective implementation of recommendations made to their respective countries. This involved fact sheets and how to use them during the UPR process. 

Participants engaged in a practical lobbying session where they had to appear before a UN delegate and present the issues affecting digital rights in their respective countries and recommendations for reform. This practical group exercise was very beneficial and informative because it gave the participants a chance to apply what they had learnt in regard to the UPR process. It gave them an opportunity to experience the review process at Geneva. 

Through the UPROAR Website, participants were guided on how to leverage research and social media platforms online for effective design and branding as part of UPR engagements  related to digital rights. The workshop also entailed guidance on what stakeholder mapping is and its importance.

In a subsequent panel entitled ‘Stemming the Tide: Has the Universal Periodic Review Mechanism Contributed to Changes in the Digital Rights Landscape of States Under Review?’ panelists shared experiences from Namibia, Democratic Republic of Congo, Uganda, Rwanda and many others. This gave the participants in the workshop an understanding on how to prepare for stakeholder engagements and how to conduct evidence-based advocacy at the United Nations Human Rights Council.

It was noted that the Covid-19 pandemic led to the imposition of travel restrictions which caused difficulties in traveling to Geneva to physically participate in the UPR process. Online opportunities were a welcome alternative but the lack of reliable internet access among civil society on the continent during the sessions presented an additional barrier

Beyond making submissions and engaging during review sessions, participants were urged to also take part in monitoring recommendations. Experiences were shared about governments such as that of Uganda which rejected all the recommendations that were given in regard to digital rights. In such instances participants were encouraged not to give up and draw back due to such government response but to keep doing the work of advocacy in line with digital rights since the same is also a notable step in the right direction. They were also encouraged to collaborate with law and policy members to ensure that they know about the UPR process and that they are able to positively respond to the recommendations given. They were also encouraged to ensure that there is in-country pressure from civil society to ensure that governments act on the recommendations given to them. It was noted that in Tanzania there has been a significant increase in the acceptance of recommendations after there has been collaboration between civil society and parliamentarians.  

The UPR sessions at FIFAfrica22 were very informative and intriguing as it engaged well-equipped workshop trainers. Experiences from those who had participated in Geneva engagements on digital rights stirred the urge for proactive engagement and participation by those coming up for review like Botswana.

Lawyers Trained to Defend Digital Freedoms 

By Edrine Wanyama |

On July 28, 2022, 82 practicing advocates in Uganda were trained on defending digital rights and freedoms. The training was organised by the International Senior Lawyers Project, the Collaboration on International ICT Policy for East and Southern Africa (CIPESA), Uganda Law Society, and the Centre for Law and Democracy.

The sessions included an assessment of Uganda’s digital rights landscape, human rights issues affecting women journalists in Uganda, international freedom of expression norms, using international law to defend freedom of expression, and practices for shaping the legal framework for cybersecurity to effectively defend human rights.

In her opening remarks, the Uganda Law Society (ULS) vice president Diana Angwech stressed that it was crucial for the society to promote digital rights as they continued to face challenges.  She added that rights abuses tend to grow during certain seasons such as elections. The ULS Rule of Law Report of 2021 documented abuses such as the state revoking of broadcasting licenses without due process, attacks on journalists, including the assault of over 20 journalists and the shooting of journalists by state security agents while covering opposition campaigns and proceedings in 2021.

In setting the pace for the capacity building training, CIPESA unpacked Uganda’s legal regime for digital rights. The session covered the meaning, scope and importance of digital rights and emerging issues for lawyers’ attention. The rights covered include freedom of expression, access to information, data protection and privacy, rights of children and their protection, intellectual property, assembly and association, the right to be forgotten, anonymity, and equal access to digital technologies.

Uganda’s constitution provides for the rights to privacy, freedom of expression, and the right of access to information. However, the country’s legislation including the Press and Journalist Act, Penal Code Act, Data Protection and Privacy Act, 2019, Anti-Terrorism Act 2002 as amended 2015 and 2016, the Access to Information Act, 2005, the Official Secrets Act, Uganda Communications Act, 2013, Regulation of Interception of Communications Act, 2010, the Computer Misuse Act, 2011, the Anti-Pornography Act, 2014 and the Public Health (Control of COVID-19l) Rules 2021 limit the enjoyment of digital rights. These laws are largely marred by vague provisions and wide limitations which enable communications monitoring and interception, and undermine free expression.

Catherine Anite of the Small Media Foundation spoke about how Uganda was experiencing a deterioration in respect for press freedom. In 2022 Uganda fell seven places on the World Press Freedom Index ranking at 132 out of 180 countries analysed.

According to Anite, while gender equality is a prerequisite for human rights, democracy and social justice, gender disparities remain evident in the media. Female journalists across the globe face similar challenges, in addition to increased and appalling levels of violence both online and offline when compared to their male counterparts. She noted:

“Female journalists have reported suffering physical and online violence perpetrated by colleagues, public figures, strangers, anonymous perpetrators. We might be speaking about journalists but as lawyers some of these things apply to our contexts as well but we don’t speak about them. These trends have negatively impacted on diversity in media because of the exodus of female journalists, which has affected their equal participation in reporting, civil and political participation due to fears of violence.”

Toby Mendel and Raphael Vagliano, from the Centre for Law and Democracy, discussed international and regional laws  on freedom of expression which are applicable to Uganda. They highlighted provisions of such as  the Universal Declaration of Human Rights (Article 19), the International Covenant on Civil and Political Rights (Article 19), the African Charter on Human and Peoples’ Rights (Article 9), and the Declaration of Principles of Freedom of Expression and Access to Information in Africa which, among others, require member states to facilitate the rights to freedom of expression and access to information online. Under these instruments Uganda is obligated to respect, protect, promote and fulfill rights.

Richard Wingfield, the Head of the Media Law Working Group at the International Senior Lawyers Project (ISLP), explored case studies on using international law to defend freedom of expression, including approaches to arguments, support and intervention as well as the filing of amicus briefs to support litigation. He explained that lawyers in Uganda could support litigation, even in cases where they are not directly involved such as by offering professional support towards impactful and successful litigation, so as to contribute to the realisation of justice for freedom of expression rights.

Practices for shaping the legal framework for cybersecurity to effectively defend human rights were discussed. Cybersecurity is critical for ensuring confidentiality of personal data at all levels.

Advanced digital surveillance and forensic tools are needed to deal with modern cyber  threats; but governments can abuse those tools if government authority is not adequately checked by confidence-inducing institutions.

Tools for cyber security such as BitDefender, malware-bytes, full disk encryption with bitlocker or file vault and strong password are critical tools for cyber security. Individuals must always be aware of potential data breaches by state authorities which often compromise individual privacy through surveillance and forensics. Common state excuses for cyber security violations were often justified by a need to protect national security, crime prevention and public order. Similarly, while laws create obligations for collectors and processors of personal data, those actors often violate the laws and, this necessitates legal intervention.

The lawyers were called upon to pay particular attention to problematic laws and policies, bills and practices so as to challenge them with the aim of establishing an enabling environment for the protection and enjoyment of digital rights.

The specific key emerging recommendations for lawyers from the capacity building training included to:

  • Collaborate with other stakeholders like civil society and academia to engage in litigation to promote freedom of expression, data and privacy rights.
  • Analyse bills and laws to establish gaps and push for repeal of regressive laws and amendment of regressive provisions.
  • Constantly write on topical issues on freedom of expression, data protection and privacy so as to raise awareness among individuals of their rights and expose any cases of violation for enhanced accountability and transparency.
  • Push telecommunication companies and internet service providers to comply with human rights when doing business, in compliance with the UN Guiding Principles on Business and Human Rights.
  • Respect individual data protection and privacy rights in their dealings to minimise conflict with the Data Protection and Privacy Act, 2019 and regional and international human rights instruments on freedom of expressions, data protections and other human rights.
  • Make use of human rights reporting mechanisms such as the Universal Periodic Review and Special Rapporteur engagements to hold the government accountable for decisions undertaken in respect to digital rights.
  • Push and demand that the government complies with regional and international human rights standards, and signs and ratifies key instruments such as the African Union Convention on Cyber Security and Personal Data Protection so as to enhance digital rights protection.

Take deliberate efforts aimed at skilling themselves in the digital rights field. This will ensure that they are equipped with knowledge and skills on dealing with issues that affect digital rights.

How the ADRF is Building Capacity and Traction for Digital Rights Advocacy in Africa

By Apolo Kakaire |

Three years since it was launched and with USD 649,000 disbursed to 52 beneficiaries across 39 African countries, the Africa Digital Rights Fund (ADRF) is powering digital rights policy advocacy and engagement across the continent. According to several beneficiaries, the ADRF is a unique funding initiative that has broken ranks with traditional funders’ structures, and to considerable effect.

The Fund is lauded for adopting a simple application process, allowing for flexibility in implementation, breaking barriers for little-known actors, enabling grantees to build on previous initiatives to ensure greater reach and impact, and supporting local context-specific and responsive projects. This, according to grantees and collaborators who were part of a June 2022 virtual convening on ADRF advocacy experiences which was aimed at promoting learning and best practice.

The ADRF was launched in April 2019 in recognition of the growing role of technology in fostering democracy and promoting equity on the African continent amidst rising arrests of activists, network disruptions in several countries, and restrictive legislation that stifled innovation and human rights online. Moreover, assessments at the time had found that many digital rights interventions were limited in scope, thinly spread across the continent, faced resource limitations, and were often inconsistent in their engagement with digital rights work. 

“The situation called for partnerships to bring together different competences to advance digital rights on the continent through seed funding,” said Ashnah Kalemera, the Programme Manager at the Collaboration on International ICT Policy for East and Southern Africa (CIPESA), the administrators of the ADRF.  Those partnerships required provision of flexible and rapid response funding to a range of entities that did not have the ability to attract funding from traditional funders, who have stringent application requirements and lengthy grant application processing times. 

With grants ranging between USD 1,000 and USD 20,000,  ADRF beneficiaries have undertaken various initiatives focused on technology in society, the public and private sectors. Besides the funding, grantees have also received capacity building in data-driven advocacy and impact communication and media relations. Across the continent, the Fund has helped to strengthen capacity in evidence-based research, collaborative advocacy and impactful policy engagements responsive to regulatory and practice developments that affect the internet freedom landscape.

At the June convening, select initiatives in Kenya, Namibia and Somalia supported by the Fund shared their advocacy experiences. In Somalia, the ADRF-supported work of Digital Shelter has seen a major breakthrough in stakeholder dialogue and engagement on hitherto undiscussed digital rights subjects such as digital inclusion, online civic space, gender-based violence online, digital entrepreneurship, civic participation and data protection and privacy

“Prior to ADRF’s support, people in the country had no appreciation for digital rights and the consequences of internet shutdowns. The Fund helped us to engage the government to talk about policies and legislation and when the conversation started, the Minister [of Communications and Technology] was very open and he was surprised that there was a local group addressing these issues,” said Ayaan Khalif, Co-founder of Digital Shelter. “The ADRF was an eye opener and helped us partner and link with other organisations and to understand what works in other countries.” 

Aayan added that applying for the ADRF funding was an easy process. She said: “We were almost giving up on donor funding after so many rejections. The ADRF process was simple. Some donors complicate things. The [application templates] are in English but sometimes it is as if it is in another language.”

The inroads made by Digital Shelter underscore the importance of collaboration and partnership in advancing digital rights in the region. Zakarie Ismael, the eGovernment Implementation Advisor in Somali’s Ministry of Communications and Technology, stated that the government of Somalia, through the ministry has responded to the appeals of Digital Shelter and other actors by prioritising the technology sector, including through the ICT Policy and Strategy 2019-2024. That government responsiveness has been crucial to the work of digital rights activists. As Ayaan noted, “It makes it easy to make inroads when you have people backing you up in policy advocacy. Our partnership with the government has been very practical in this regard.”.

As legislative and oversight bodies, national parliaments have a key role in advancing  digital inclusion and rights-respecting digital policies and practices. Indeed, some grantees, including Mzalendo Trust in Kenya, have dedicated efforts to promoting citizen-parliamentary engagement on digital rights. With the suspension of parliamentary proceedings in Kenya at the height of the Covid-19 pandemic, the ADRF supported functionality upgrades to the Dokeza and Bonga Na Mzalendo platforms. The upgrades enabled citizen participation through remote annotation and submission of memoranda on bills including on the controversial Huduma Initiative

Mzalendo Trust has also worked to promote an inclusive digital economy in Kenya. Like Ayaan, Slyvia Katua, a Programme Officer at Mzalendo Trust, lauded the ADRF for using a simple and straightforward application process. “The application requires you to outline what issues you are targeting, what solutions you offer and what impact you foresee,” she said. 

Meanwhile, Josephat Vijanda Tjiho, from the Internet Society (ISOC) Namibia Chapter, appreciated the ADRF grant process for allowing them to build from one project to another. “We organised forums on digital media and elections, then stepped up to privacy and data protection especially around the Covid-19 pandemic and thereafter a campaign against online violence against women and children. Our ideas [which the ADRF supported] were building from one to the other and this made our application process quite smooth,” Tjiho said. 

ISOC Namibia conducted research and convened engagements with different stakeholders on data protection, gender-based violence online and access to information. “Based on our engagements, the Namibia Access to Information (ATI) Act was passed in June 2022 and this was partly made possible through support from the ADRF,” stated Tijho. For its campaign against gender-based violence, ISOC Namibia successfully collaborated with prominent personalities including a technologist, musician and pageant as part of the 16 Days of Activism Against Gender-Based Violence. The campaign fed directly into work on research and workshops on gender-based violence in the Southern African Development Community (SADC) region for which ISOC Namibia partnered with CIPESA, Meta, Pollicy, Genderlinks and University of Pretoria Centre for Human Rights.

According to Neema Lugangira, a Member of Parliament (MP) in Tanzania, undertaking digital rights advocacy without involving parliament has created huge gaps in ensuring that policy and legislation around digital rights are rights-respecting and are effectively implemented. She faulted civil society organisations seeking policy reforms for concentrating on other arms of the government and ignoring parliaments yet they play a key role in policy formulation and oversight. She urged ADRF grantees and other digital rights actors to actively engage MPs as part of their programming. “We should prioritise capacity building for MPs because they are ignorant about digital rights,” said Lugangira.

The experiences of ADRF grantees indicate the potential of rapid response and flexible funding in positively shaping the digital rights landscape in Africa through targeted research, advocacy and movement building.

CIPESA Submission to the ACHPR on Ratification of the African Protocol on Disability Rights

The Collaboration on International ICT Policy for East and Southern Africa (CIPESA) has made a submission to the Africa Commission on Human and People’s Rights (ACHPR) on the situation and issues on the continent that have a critical human rights dimension for persons with disabilities in the context of ICT. In the submission made in April 2022 and addressed to the Working Group on the Rights of Older Persons and People with Disabilities in Africa, CIPESA reiterates the urgent need for member states to ratify the  Protocol to the African Charter on Human and People’s Rights of Persons with Disabilities in Africa so that it comes into force.

CIPESA notes that four years after its adoption, the Protocol has been signed by less than a dozen countries and only two countries (Cameroon and Mali) have ratified it. For the protocol to come into force, at least 15 countries are required to ratify it.

“The adoption of the Protocol was a major step forward in protecting and advancing the rights of persons with disabilities, but the failure to sign and ratify it undermines these efforts,” submits CIPESA. The submission adds that, without a doubt, African governments must do more to ensure that persons with disabilities access and use digital technologies and that there is sufficient disaggregated data to inform programme interventions. Ratifying the protocol will be a major- but insufficient step in this direction.

In line with the Protocol’s provisions requiring State Parties to: put in place policy, legislative, administrative, and other measures to ensure persons with disabilities enjoy the right to access information (Article 24); ensure the systematic collection, analysis, storage and dissemination of national statistics and data covering disability to facilitate the protection and promotion of the rights of persons with disabilities (Article 32), CIPESA recommends that the Working Group prioritises and engages the Member States to:

  • Ratify the Protocol to the African Charter on Human and Peoples’ Rights on the Rights of Persons with Disabilities in Africa as a matter of utmost priority, and promote awareness of its content and the rights it protects.
  • States parties should issue periodic reports to the African Commission, in accordance with Article 62 of the African Charter, on legislative and other measures undertaken for the full realisation of the rights of persons with disabilities.
  • Enhance the development, implementation, and enforcement of relevant and enabling national policies and legislation on accessible communication products and services such as disability laws, Codes of Practice, consumer rights regulations, and ICT and disability policies.
  • Offer tax exemptions and incentives for innovation as well as investment in assistive devices and software tailored to the needs of persons with disabilities.
  • Promote the awareness of, and access of persons with disabilities to specialist devices and technologies such as manual Perkins Brailler, hand-held magnifiers, hand frames/slates and communication boards, screen readers, text-to-speech software, and Augmentative and Alternative Communication (AAC).
  • Promote meaningful participation of persons with disabilities in decision-making and policy development processes at national and regional levels through affirmative action and other efforts that promote fair representation.
  • Ensure that information on emergencies such as the COVID-19 pandemic, conflicts/wars, and natural calamities, is inclusive and provided in accessible and appropriate formats and languages, whether it is in SMS, audio, visual or document form.
  • Ensure the systematic collection, analysis, storage, and dissemination of national statistics and data covering disability to increase the availability of high-quality, timely, and reliable disaggregated data by disability, in order to facilitate the protection and promotion of the rights of persons with disabilities. The statistics and data should be disseminated in formats accessible to persons with disabilities.
  • Promote multi-stakeholder cooperation between governments, the private sector, civil society, and other relevant actors to promote the rights of persons with disabilities in accordance with the Protocol.

Read CIPESA’S full submission here.