Why Access to Information on Covid-19 is Crucial to Persons with Disabilities in Africa

By Paul Kimumwe |

While the Coronavirus disease (Covid-19) continues to ravage the world, there is growing concern that critical messages about the disease that are disseminated by health authorities, telecom companies, and broadcasters are not reaching persons with visual and hearing impairments.

In order to create public awareness about the pandemic, African governments are using mass media, notably radio and television, as well as Information and Communication Technologies (ICT), particularly  social media and mobile telephony platforms. The countries with confirmed Covid-19 cases, such as the Democratic Republic of Congo, Eritrea, Ivory Coast, Kenya, Nigeria, Rwanda, Senegal, South Africa, Tunisia, and Uganda, have restricted people’s movements and banned public meetings.

Various telecommunication companies, such as MTN Uganda, Safaricom in Kenya, MTN Ghana, have also removed service charges on mobile money transactions and discounted internet data prices so as to increase accessibility and affordability of the internet.

In South Africa, Vodacom and MTN are “zero-rating” information portals run by the country’s Department of Health, meaning they allow users to access vital information about the disease even when they do not have data bundles. Vodacom customers can get free vital information about the Covid-19 pandemic by visiting the website, www.sacoronavirus.co.za. 

However, concern is growing that some persons with disabilities are being left behind in accessing information on Covid-19. This is because, despite the recent expansion in the usage of ICT in the region, a large section of persons with disabilities faces digital exclusion due to lack of access and affordability of the requisite ICT tools and equipment,  as well as failure by broadcasters and telecom operators to provide information and services in disability friendly formats. 

Ms. Judy Okite, a disability rights activist and founder of the Association for Accessibility and Equality, says that in Kenya, it is “once in a while when they [media and government] remember there is a [need for a] sign language interpreter during Covid-19 related press briefing but, it’s very unsatisfactory.” She adds that there are no messages in braille, and for live broadcasts of discussions by national experts leading the fight against Covid-19, there is neither sign language nor captions.

The situation is similar in Ethiopia, according to Awoke Dagnew, who works with the Ethiopian charity organisation Together! He says most persons with disabilities in Ethiopia are being excluded because “most of the messages and platforms are in formats and via [electronic] channels that persons with disabilities have limited access to,” namely, television, radio, social media and telephone messages.

While several African countries have  enacted laws and policies to advance the rights of persons with disabilities, including those on access and use of ICT, these laws have largely remained on paper as key provisions are neither being implemented nor enforced. For example, while broadcasters are required by law in many African countries to have sign language insets or subtitles in newscasts, educational programmes and other programmes covering national events, there is little evidence of this being done. Indeed, some key television broadcasts and public service announcements related to Covid-19 have neither sign language interpretation nor sub-titling.

See: Removing Barriers to ICT Accessibility for Persons with Disabilities in  Kenya, Tanzania and Uganda

“In Uganda, [whereas] the Ministry of Health released a video in sign language with general information, still graphics used in most informative materials are not in font types, sizes and colour combinations [optimised] for the visually impaired,” observed Mohamed Kimbugwe, the Digitalization and Human Rights Technical Advisor at the GIZ office in Uganda. Moreover, while major television stations have sign language interpretation on major new bulletins, this is not always the case for other crucial public awareness campaigns, such as press conferences and updates from the national Covid-19 task force.

In Nigeria, sections 24 and 25 of the Discrimination Against Persons with Disabilities (Prohibition) require public hospitals and the government to ensure that persons with disabilities are given special considerations, including provision of special communication during situations of risk, emergicies (such as Covid-19) and other natural causes.

 In the wake of declaring Covid-19 a global pandemic, the WHO  issued guidelines to mitigate the impact of the outbreak on persons with disabilities. It called upon governments to take action to ensure that persons with disabilities are not left behind in the fight against Covid-19. Regarding Covid-19 public health information and communication,  the WHO urged governments to:

  • Include captioning and, where possible, sign language for all live and recorded events and communications. This includes national addresses, press briefings, and live social media. 
  • Convert public materials into “Easy Read” format so that they are accessible for people with intellectual disability or cognitive impairment. 
  • Develop accessible written information products by using appropriate document formats, (such as “Word”), with structured headings, large print, braille versions and formats for people who are deafblind. 
  • Include captions for images used within documents or on social media. Use images that are inclusive and do not stigmatise disability. 
  • Work with disability organisations, including advocacy bodies and disability service providers to disseminate public health information.

The International Disability Alliance (IDA) has also issued key recommendations towards a disability-inclusive Covid-19 response, including the requirement that persons with disabilities must receive information about infection mitigating tips, public restriction plans, and the services offered, in a diversity of accessible formats with use of accessible technologies.

The implementation of the WHO and IDA guidelines and recommendations need not be treated as a favour, as African governments are obligated under both the United Nations Convention on the Rights of Persons with Disabilities (CRPD) and the Protocol to the African Charter on Human and Peoples’ Rights on the Rights of Persons with Disabilities in Africa (ACHPER PD) to provide equal opportunities, accessibility and inclusion of persons with disabilities. Specifically, Article 9(b) of the CRPD requires states to take appropriate measures to ensure that persons with disabilities have access, on an equal basis with others, to information, communications and other services, including electronic services and emergency services.

Additionally, Article 25(b) of the CRPD requires states to take all appropriate measures to ensure access for persons with disabilities to health services (and information) that are gender-sensitive, including health-related rehabilitation.

On the other hand, state are required, under Article 19(2) of the ACHPER PD Protocol to put in place policy, legislative, administrative and other measures to ensure these rights, on the basis of equality, including requiring private entities, such as telecom and television companies, to provide information and services in accessible and usable formats for persons with disabilities.

Re-echoing the WHO guidelines, Okite recommends that governments and other agencies, including telecom and broadcasting companies involved in the design and dissemination of Covid-19 related public information, should ensure that they make all the information accessible to persons with disabilities. “If it’s online content, let it be in an accessible format, in some instances use diagrams, in a live interview /discussion let there be transcriptions or sign language that all persons may get information first-hand to avoid anxiety and fear and misunderstanding.” 

Televised programmes that feature experts discussing Covid-19 should have sign language interpreters and transcriptions to enable persons with visual and hearing impairments to benefit from the expert knowledge.

In Uganda, the National Union for Persons with Disability (NUDIPU) has called for the suspension of the social media tax (OTT) whose introduction in 2018 exacerbated the digital exclusion of marginalised populations, to enhance access to information and ease communication for persons with disabilities, especially the deaf.

In designing and disseminating Covid-19 related messages, telecom companies need to ensure that these are in multiple formats – including SMS, audio, visual and in disability friendly formats.

Two Years of CIPESA’s Fellowship Programme

Fellows |
In 2017, the Collaboration on International ICT Policy for East and Southern Africa (CIPESA) introduced its fellowship programme. The media fellowship aims to raise media understanding of, and its effective and consistent reporting of Information and Communication Technologies (ICT) -for-democracy issues in East Africa towards increased quality and regularity of reporting, as well as a greater diversity of voices, in coverage related to ICT, democracy and human rights.
The academia fellowship aims to nurture university students’ and early career academics’ understanding of ICT for governance, human rights and development. By engaging members of the academic community, the programme benefits partners of the ICT4Democracy in East Africa network through placements of individuals with skills in fields such as ICT, mass communication, and informatics, within the partner organisations. Ultimately, the programme aims to grow links between the academic community and practitioners in the ICT field for mutual research, learning and knowledge exchange, so as to create the next generation of ICT for democracy and ICT for human rights champions and researchers.
Since its launch, six fellows representing east and western Africa, as well as Asia have participated in the programme, with a wide range of outputs including commentaries, broadcast content, multimedia content and journal articles. The learning and experiences of the fellows so far have informed CIPESA’s contributions to the to the curriculum review and development for a Masters in eGovernance programme at Makerere University. Furthermore, CIPESA’s engagements with the Makerere University Development Informatics Research Group on the role academics should play to contribute to the national and global development agenda, including through producing actionable knowledge, creating closer linkages with development practitioners and seeking ways to influence policy making.

Media Fellow Emmanuel Kajubu assessed the performance of elected leaders in Western Uganda, a year after they were voted into office. Many of them had committed to improve service delivery in education and health if they were elected.

Kajubu focussed on the districts of Kabarole, Kasese, Kyenjojo, Kyegegwa, Ntoroko and Kamwenge, which form the Rwenzori region, and worked in collaboration with ICT4Democracy in East Africa partner Toro Development Network (ToroDev).
In interviews with the electorate, some members of the community said that after being elected, the leaders had not returned to consult them on issues affecting the community or fulfilled pledges made during campaigns. In response, many of the elected officials argued that they were constrained to carry out monitoring and supervision of government projects due to lack of funds.
His stories were published on the Uganda Radio Network website, an online news agency, and on the Toro Development Network website.

He also developed an eight-minute radio feature which summarised the views of the electorate and local leaders. It was broadcast on Hits FM Radio in Fort Portal on October 22, 2017. The radio station works with ToroDev and serves as a platform for the community in Western Uganda to air out issues affecting them and also for leaders to be accountable to the community.

Media Fellow Lilian Kaivilu is a multimedia journalist based in Nairobi, Kenya, with a keen focus on Innovations, Gender, Health, Business and Development stories.
Lilian works as a writing consultant with the World Bank Group and is also the founder of Impacthub Media, an online media platform that focuses on Development, Health and Innovation stories from Kenyan communities.
She has previously worked as a reporter for the Global Press Journal, Kenya News Desk. She has also worked as a Features reporter at Mediamax Network Limited (People Daily Newspaper), and as a sub editor at Shrend Publishers and Supplies Limited.
Lilian is a Bloomberg Media Initiative fellow (Strathmore Business School), Safaricom Business Journalism fellow (Strathmore Business School), Kenya Institute of Mass
Communication Journalism Graduate and a Linguistics, Media and Communication graduate from Moi University. In addition, she is currently taking Digital Capacity Building training by the World Association of Newspapers and News Publishers (WAN-IFRA). She is also pursuing the WAN-IFRA’s Media Management course.
For her fellowship tenure, in the run up to Kenya’s 2016 elections, Lillian covered stories on ICT for rural access to information, how ICT is transforming Nairobi’s Kibera slum, challenges to political participation by rural populations and local innovations in maternal health care.

Marvin Bwire, another fellow from Nairobi, Kenya worked to profile and raising awareness about female genital mutilation in Meru and empowering women in politics in Kenya through video.  He worked with the Kenya Human Rights Commission (KHRC), a member of the ICT4Democracy in East Africa Network.
Marvin is a film production graduate from the Multimedia University of Kenya and a practicing journalist. His work is built upon the pillar of the right to information for all and the use of ICT as an avenue to provide information to the public.

Wanjiru Mburu is an ICT4D researcher who is passionate about using ICT to bridge the healthcare digital divide in developing countries.
She holds a bachelors degree and masters degree both in Computer Science, and is currently a Ph.D. student at the ICT4D center, University of Cape Town. Her research interests are mainly in human-computer interaction for development (HCI4D) and mobile health fields.
For her fellowship, Wanjiru worked with the Kenya Medical Research Institute (KEMRI) and African Population and Health Research Centre (APHRC), to research how ICT platforms can be used to educate mothers of preterm infants on their health rights in Kenya. A journal article from this fellowship was accepted in the 6th International Conference on Mobile Communication Technology for Development (M4D2018) conference proceedings which was held in Kampala, Uganda in December 2018.
Sotheavin Doch holds a bachelor degree in Environmental Science and a masters degree in Disaster Risk and Resilience. She was a Research Assistant for the BBC Media Action in Cambodia and is a Research and Partnership Officer with Open Development Cambodia (ODC). She supports ODC’s team to promote and teach use of ODC’s site as an open data platform. She organises training for citizens citizen journalists local authorities and others stakeholders to access information of public services’ services/fee digitized on ODC’s website and also conducts training on ‘data-driven journalism’ to journalist students in Cambodia to generate and analyse data into their news reports to develop a new way of telling stories with data or evidence.
Sotheavin joined CIPESA as part of the South South Media Lab (SSMLab) in-residence program which aims at increasing networking and collaboration within the media sector between South-East Asia and East Africa. The residencies took place during November and December 2018.
As part of the fellowship, Sotheavin worked on the use of open data and open source technology to promote public service delivery. She also conducted a training for journalists on data-driven reporting methods, through engagements and needs assessments with ICT4Democarcy Network partners CIPESA, Women of Uganda Network (WOUGNET) and Transparency International (TI) Uganda.
Tomiwa Ilori was hosted as a fellow by CIPESA as part of his Masters study in Human Rights and Democratisation in Africa at the University of Pretoria. He undertook research related to his study in the area of constitutional law.
He contributed to CIPESA’s policy analysis work by researching and producing commentaries on How Nigeria and Uganda are Faring on the Right to Information and consumer protection.
Tomiwa has experience working on digital rights in Nigeria and was also in charge of ongoing strategic litigation suits with respect to digital rights infringement in Nigeria by Paradigm Initiative. He is the coordinator of the NetRights Africa Coalition.
 
 

CIPESA Submits Comments to Uganda Communications Commission on Improving Access to ICT for Persons With Disabilities

By Daniel Mwesigwa |

Last year, Uganda’s communications regulator commissioned a study to establish the status of access and usage of Information and Communications Technology (ICT) by Persons With Disabilities (PWDs). In response to a call for comments, CIPESA made submissions to the commission, which could help various government agencies to devise strategies that meaningfully improve usage of digital technologies by PWDs.

According to Uganda’s statistics bureau, persons with disabilities comprise 16% of the country’s population of 37.5 million. However, they face various limitations in accessing and using ICT tools and services. The draft report of the study commissioned by the Uganda Communications Commission (UCC) shows that national ownership of a radio and a mobile phone among PWDs was high at 70% and 69% respectively. Ownership of fixed-line telephones, desktop computers and laptops was very low at 0.5%, 1% and 3.9% respectively. However, 15% of respondents’ households had access to the internet.

Below are highlights from CIPESA’s submission:

1. Disaggregate results by type of disability

While the report highlights respondents’ type of disability (61% had a physical disability, 31% were visually impaired, and 2% had a hearing impairment), it does not show how the nature of disability affects access and usage of ICT. Persons with disabilities are not a homogeneous group and the nature of disability influences how they may perceive, be able to access and to use ICT. It may not be possible therefore to address the distinct needs of different categories of PWDs if data is not disaggregated by type of disability – as indeed it should be disaggregated based on gender, location, income, among other demographics.

2. Comparative analysis of data

The report provides ICT access and usage figures for PWDs (e.g. 69.4% mobile phone ownership; 3.9% had laptop computers and 1% desktop computers; 15% of households had access to the internet). However, these numbers need to be presented and analysed alongside overall national statistics on access and usage if they are to offer direction on the remedial actions needed.

3. Taxes deepening exclusion

Only 14% of respondents had access to a bank account compared to 86% that accessed financial services through other mechanisms such as mobile money, and village savings and loan associations. One third (33%) had access to mobile money, which is lower than the national average of 55%. Further, 41% of the respondents lacked access to any form of financial services, compared to the national average of 22% that is financially excluded.

Worryingly, majority of PWDs (66%) said their use of social media had reduced with the introduction last July of the Over The Top (OTT) tax, while 26% said they were no longer using social media. Only 8% had not changed their usage levels. According to the report, 52% of PWDs access social media on their phones, while 12% access it on their computers.

As CIPESA has previously found, OTT platforms and mobile money networks had considerably eased the lives of PWDs. For example, platforms like WhatsApp were used to disseminate critical information among individuals with hearing impairment before the added cost of using social media rendered them unaffordable to many, who already faced challenges in finding employment and often relied on financial support from others. For UCC and other relevant Uganda Government institutions, these findings should not be taken lightly and should inform policy in this area.

4. Awareness and usage of assistive technologies

Assistive technologies are products, devices, or equipment, used to maintain, increase, or improve the functional capabilities of individuals with disabilities. A very concerning finding in the Report is that 76% of PWDs were not aware of the low-cost Assistive Technologies like manual Perkins Brailler, hand-held magnifiers, hand frames/slates and communication boards. Only 14% of respondents were aware of the Perkins Brailler yet its usage was low at 4%. Just 13% of the respondents were aware of magnifiers yet only 2% used them. Issues of awareness of these technologies, their cost and availability, are apparent. The UCC should offer subsidies for assistive technologies through the universal service access fund, the Rural Communications Development Fund (RCDF).

5. Privacy and data protection

The right to privacy is a core entitlement for every individual under article 27 of the Uganda Constitution. The Persons With Disabilities Act, 2006, section 35 protects PWDs from arbitrary or unlawful interference with their privacy. However, the report does not assess PWDs awareness of their privacy rights or data security skills. Such an assessment is necessary to inform remedies including on capacity development.

6. Public and private sector compliance

Consistent with international conventions and instruments such as the UN Convention on the Rights of Persons with Disabilities (CRPD) and the Sustainable Development Goals (SDGs), as well as domestic laws such as the national constitution, Persons With Disabilities Act 2006, and the National IT and Disability Policy, the emphasis on inclusion and non-discrimination for PWDs cannot be overlooked if the country is to attain her development goals.

As the government works towards implementing the ICT and Disability Policy, the emphasis on Website Accessibility Guidelines (WAG) can be fast-tracked by auditing compliance with the 2014 ‘Guidelines for Development and Management of Government Websites’ which were developed by the National Information Technology Authority Uganda (NITA-U). Entities that do not comply with universal accessibility standards should be sanctioned.

Further, the Equal Opportunities Commission, working with other relevant entities, should require government ministries, departments and agencies (MDAs) and private enterprises which offer public services to prepare annual statements in which they report on how they have worked towards increasing accessibility and inclusiveness for PWDs.

The full submission can be read here.

CIPESA-ICT4Democracy Media Fellowship Programme

Fellowship Opportunity |
About the ICT4Democracy in East Africa network
The network works in Kenya, Tanzania, and Uganda to achieve two top-line objectives: 1) Increased citizen participation in governance and the realisation of human rights through ICT; and 2) Improved transparency and accountability of governments through ICT. Partners in the network are the Collaboration on International ICT Policy for East and Southern Africa (CIPESA), the Women of Uganda Network (WOUGNET), Transparency International Uganda, iHub Research (Kenya), the Kenya Human Rights Commission (KHRC), the Commission for Human Rights and Good Governance (CHRAGG, Tanzania) and Toro Development Network (ToroDev). Read more about the network here: www.ict4democracy.org.
Aim of the Fellowship Programme
The CIPESA-ICT4Democracy Fellowship (Media) aims to raise media understanding of, and its effective and consistent reporting of ICT-for-Democracy issues in East Africa. It is expected that the fellowships will result into increased quality and regularity of reporting, as well as a greater diversity of voices, in coverage related to ICT, democracy and human rights.
Applications will be accepted on a quarterly basis as per the below dates:

Fellowship round Application deadline
May – July April 1st
August – October July 1st
November – January September 1st
February – April January 1st

Duration: The fellowship shall last for up to three months but can in some circumstances be shorter.
Outputs
Participants in the media fellowship programme will be expected to create various outputs, which may include print articles such as features, broadcast content, multimedia content (animations and infographics) and social media content, as will be agreed in advance of the start of the fellowship.
Eligibility
Applicants should be early career print, broadcast, online or multi-media journalists. Individuals passionate about media platforms such as bloggers and social media enthusiasts with relevant skills are also welcome to apply. Applicants must be based in Kenya, Uganda or Tanzania. It is preferred that applicants have experience in coverage of areas that are relevant to the work of ICT4Democracy in East Africa partners, which may include social accountability, gender and youth mainstreaming, technology, human rights and governance.
Compensation
The fellows shall be given a modest allowance to cater for expenses related to producing the outputs of their fellowship engagement.
Application process
To apply, email [email protected] with subject line stating Application for Media Fellowship. Submissions should include:

  • Your CV
  • A statement of interest that mentions the outputs you intend to produce from the fellowship, how they will be disseminated, and how these outputs are beneficial to the work of the ICT4Democracy network or its partner organisation(s), a suggestion of which partner organisation you wish to be attached to, the duration for which you wish to have the fellowship, and anticipated expenses. The statement of interest should not exceed 3 pages.
  • Two samples of your work (written or other)
  • Two reference letters.

CIPESA-ICT4Democracy Academia Fellowship Programme

Fellowship Opportunity |

 About the ICT4Democracy in East Africa network
The network works in Kenya, Tanzania, and Uganda to achieve two top-line objectives: 1) Increased citizen participation in governance and the realisation of human rights through ICT; and 2) Improved transparency and accountability of governments through ICT. Partners in the network are the Collaboration on International ICT Policy for East and Southern Africa (CIPESA), the Women of Uganda Network (WOUGNET), Transparency International Uganda, iHub Research (Kenya), the Kenya Human Rights Commission (KHRC), the Commission for Human Rights and Good Governance (CHRAGG, Tanzania) and Toro Development Network (ToroDev). Read more about the network here: www.ict4democracy.org.
 Aim of the Fellowship Programme
The CIPESA-ICT4Democracy Fellowship (Academia) aims to nurture university students’ and early career academics’ understanding of Information and Communication Technologies (ICT) for governance, human rights and development. By engaging members of the academic community, the programme benefits partners of the ICT4Democracy in East Africa network through placements of individuals with skills in fields such as ICT, mass communication, and informatics, within the partner organisations. Ultimately, the programme aims to grow links between the academic community and practitioners in the ICT field for mutual research, learning and knowledge exchange, so as to create the next generation of ICT for democracy and ICT for human rights champions and researchers.
Applications will be accepted on a quarterly basis as per the below dates:

Fellowship round Application deadline
May – July April 1stst
August – October July 1st
November – January September 1st
February – April January 1st

Duration: The fellowship shall last for three months but can in some circumstances be shorter or longer by up to a month.
Role of the fellows
Provide skills in their field of competence to enhance the work of ICT4Democracy in East Africa Network partner organisations. During the subsistence of the fellowship, the fellow will be expected to produce outputs, such as blog posts, commentaries, briefs, curriculums, multimedia content, and journal articles, as will be agreed in advance of the start of the fellowship. The skills of the fellow will guide the role assigned to them.
Eligibility
Applicants should be university students or early career academics. While there are no limitations on where the university is located, it is preferred that the students be from African universities. Applicants should have competence in areas that are relevant to the work of ICT4Democracy in East Africa partners, which may include ICT4D, Computer Science, Journalism, Informatics, Gender Equality, Development Studies, Human Rights and Governance.
Compensation
The fellows shall be given a monthly stipend to cater for their expenses during the duration of the fellowship. The amount may vary depending on location, outputs and on the qualifications of the fellow.
Application process
To apply, email [email protected] with subject line stating Application for Academia Fellowship. Submissions should include:

  1. Your CV
  2. A statement of interest that mentions the areas of competence that you wish to contribute to the fellowship programme, a suggestion of which partner organisation you wish to be attached to, the duration for which you wish to have the fellowship, the proposed outputs from your involvement in the programme and breakdown of expenses. The statement of interest should not exceed 3 pages.
  3. Copy of transcript or letter confirming university affiliation.
  4. Two samples of your writing.
  5. Two reference letters.